Hi Dianna

Has your PM dr tried any meds to control your pain? I know one member who has had amazing success with ketamine infusions since having RSD secondary to TOS. I take oral ketamine (100-150mg) per day though will not (currently) consider the coma because of other medical stuff that makes it more dangerous for me to have. I have RSD and generalised dystonia after a fall when I was 16 (I'm now 22) and have it full body. The ketamine has helped the most with the pain out of all the medication and sure beats oxycontin, MST, methadone, fentanyl, you know. Stuff like that. But in the end it can only be your choice whether to try it!!!

Best of luck and let me know if you want more info about oral ketamine.

Take care

Love

Frogga xxxxx