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Old 01-15-2008, 11:47 PM
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In Remembrance
 
Join Date: Sep 2006
Location: about 45 minutes to anywhere!
Posts: 3,086
15 yr Member
lou_lou lou_lou is offline
In Remembrance
lou_lou's Avatar
 
Join Date: Sep 2006
Location: about 45 minutes to anywhere!
Posts: 3,086
15 yr Member
Thumbs up welcome dear Max!

welcome dear Max
I am a young onset parkie too - very interested in your self study =
as a matter of fact -we have many at the PD forum here at Neurotalk
that would love for you to come and share your news!
here is the direct link to the PD Forum,
http://neurotalk.psychcentral.com/forum34.html
sincerely,
tena

Quote:
Originally Posted by Max19BC View Post
Here's a quick history on my PD.

I'm , 53 years old or*young, I was diagnosed with PD back in March 2001. I had a minimal exposure to PD meds back then , just long enough (one month on sinemet) to see an improvement and convinced me that I have PD. Whatever PD is. I started taking lots of vitamins, antioxidants, eating better, exercising the best I can, meditating, acupuncture, Ti-Chi,* tried PDrecovery, Chi-Gong, visualizing techniques, energy work, etc. etc. I'm sure it all helped, but eventually I needed a* walker and could barely take care of myself. By February of 2006, I was looking into getting a* wheelchair. I couldn't take it any longer, so I regrettably*broke down and decided to take Sinemet. In about a week, sinemet started to work. And in about a month,* I was a completely different person. I could walk, got my balance back, started to get back my normal weight and I could even ride my mountain bike again. But in only 6 months of taking sinemet, I found it was taking* longer and longer to kick in, not lasting as long and sometimes it wouldn't kick in at all. Sometimes I would take 1 1/2 tablets of Sinemet CR 200/50, at a time, with no effect at all. Talk about being scared all over again. I knew getting on sinemet would be a limited ride, but I never thought it could be this short for me.
** * * When I heard about "Mucuna Pruriens"* (Zandopa also called HP-200),* a natural herb from India, about a year ago, I got very interested. I gradually reduced my Sinemet CR 200/50 from 5 tablets a day to only one a day and replacing it with mucuna.
* * * * I feel like this "Mununa" (Zandopa) is REALLY HELPING me a lot. I*take it 3 or 4 times a day and can pretty well function normally when the herbs kick in, not*bad considering that I was ready for a wheelchair. When*the herbs wear off, my PD symptoms still comes back, but not nearly*as bad as before.*

Sincerely,
Max
__________________
with much love,
lou_lou


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by
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, on Flickr
pd documentary - part 2 and 3

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Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
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Max19BC (01-16-2008)