one person who manifested with RSD in our support group for Lyme. She was really poor and could not afford an ongoing doctor.

She had a history of RSD diagnosis 10 years back which was treated with IV and went away, had been Lyme then. Went into full remission 10 years, then moved to CA, and got it again. She also had really bad encephalopathy and frankly, I thought she was nuts. In 8 years of facilitating a support group I have never had another person that I thought was truly insane, but she seemed to be. She also had an obvious problem with being over-medicated. She was always talking about aliens & one of the Beatles...

I thought she was just a total nut until she rolled up her pant leg and showed me her leg, wihch was atrophying. And then I figured out her slurring was not from meds... I felt really bad, because I had slurred too, but she was so out of it and seemed loaded all the time on pain meds. But she was falling and off balance all the time, too, and it was hard to tell if that was from...
she was on a lot of pain meds.

She could not afford a doctor and self-treated on antibiotics from the local feed store in Aromas. A year after I had seen her, the same, crazy talking, falling all over the place and muscles beginning to atrophy, I got a phone call. She had moved to up by Chico.

She called to thank me. She spoke like a normal person. She was doing great. She was normal. It was so weird.

She was completely normal, clear as a bell. 100% appropriate, no talk of aliens, no talk of the Beatles-

She said the abx had worked!!! I had always been against self-treating until her. She had just gone to the feed store and gotten animal abx!!!

Anyway, she is doing well to this day last I heard-
And that's the only Lymie I knew with RSD except one person on Lymenet.org had that diagnosis, but I forget who- it is rare to have that with Lyme- but can happen-
Best wishes,
Sarah