Greta, if you grew up in CT and HAD Lyme and now have MS I would bet my life you still have Lyme. Seriously. We have had so many people come to our support group with tick bites who went on to develop MS. And they got better with longterm IV Rocephin. Lyme tends to go into REMISSION, not cure. It OFTEN comes back in a later stage- that is why they say "Tertiary Lyme disease" or "secondary stage Lyme". Secondary stage Lyme tends to be firbomyalgia or CFS. Tertiary can be MS. It often goes away completely and comes back in a later, more serious manifestation.
Sideways to Chris, nope, I will never be wealthy. When I did have money, I gave it all away!*)!*! I don't want to be wealthy- on the other hand, would be nice not to be poor but that's ok, too, I am rich with friends and life. And cats. And a pygmy goat*)! And human kids, two girls, Evan & Isadora*_!!
Anyway, I know, sounds like I am a crazy Lymie. That's okay. This one neurologist Patricia Coyle once told a MS Lymie acquaintance of mine,
"The only differential between Lyme & MS is response to treatment."
And since the insurance company standard treatment is 30 days, I would have been diagnsoed MS or Parkinsons I am sure! Because I did not respond to Lyme treatemtn until 18 months in!!! 1 year of orals- and 9 months of IV total- but thank god I hung in there because I am 100% symptom free today. (And let me say that Parkinsons is rarely rarely Lyme, I just happen to be one of the lucky (not!) 2% of Lymies with Parkinsonian features).
There is an investigation by CT Attorney General Richard Blumenthal into a cover-up by mainstream researchers of the true nature of Lyme. Sounds Plum island, I know, but it's true. Do a Google news search with "Richard Blumenthal" and "Lyme disease" if you doubt me*)!!
Anyway, it's a paradigm shift. I know this young Lymie activist named Victoria, she is only 15 (or 16? 15 I think!) and has the seizures version of Lyme, and she wrote to me once, "It is not a question of IF, it is a question of WHEN." It will happen. I know, I sound preposterous. I don't think ALL other diseases are often Lyme at all, but MS, yes, I do. Based on being a support group leader for 8 years now and having multiple people get Lyme and then get MS and then get betetr with IV abx, and we have a local primary care doc, bless him, who rediagnoses his MS patients as Lyme, and they have gotten better, too!
This study by
Brorson & Brorson
found spirochetal cysts in
10 out of 10 MS patients-
http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum
This study also shows a strong link in MS patients:
http://www.aaem.pl/pdf/aaem0024.htm
There are many many abstracts that show they are the same on MRI. And Lyme is negative 80% of the time in LPs.
http://www.ncbi.nlm.nih.gov/pubmed/9...ubmed_RVDocSum
QUOTE:
It is widely accepted that magnetic resonance imaging (MRI) findings are not totally specific for the diagnosis of multiple sclerosis. White matter lesions that mimic those of multiple sclerosis may be detected in both normal volunteers and patients harbouring different diseases. Virtually all the characteristic features of multiple sclerosis are sometimes encountered in other conditions affecting predominantly the white matter. Different conditions such as vasculitis, subcortical atherosclerotic leukoencephalopathy, Lyme disease, or acute disseminated encephalomyelitis can be virtually indistinguishable from multiple sclerosis on conventional MR images. UNQUOTE
Here's why Lyme is negative in spinals- because it goes into cystic form
which reads as negative, does not react same way with fluids-
http://www.ncbi.nlm.nih.gov/pubmed/9...ubmed_RVDocSum
ANyway, thank you for not being mean although we disagree. There is technically no difference between MS & Lyme. There is more than crossover, there is identical manifestation, virtually not a single thing MS does that Lyme doesn't. If you go to this page and look at the maps, you will notice
there is something VERY interesting about them- these are the Lyme maps of mortality- Lyme deaths- and the MS maps- of MS deaths- please, anyone here can go ahead and say, "Sarah, you are a whacko Lymie!" but FIRST
please, pleease, pleeeease, just GO HERE and LOOK at the MAPS!!!! Just LOOK at the maps!!! Please!!! Go to this link & scroll down & just LOOK!!!
http://www.canlyme.com/megan_geostat...analysis2.html
Then you can see why I think what I do, ok? Seriously!!! Megan Blewett is at Harvard and a great researcher and I have a lot of respect for her work.
And lastly, look at this poor guy!!! I was searching the old John Hopkins autopsy database and came across this guy- just 40 years old!!! You think he died of MS, fine, but every single thing he had could have been Lyme-
and he would have lived!!! He would have lived. He had POSITIVE Lyme serology and it was ignored. He would have lived.
http://www.angelfire.com/planet/lymedisease/2/7.html
My mainstream docs were letting me get progressively weaker with "a multi-system progressive neurological disease triggered by post Lyme Syndrome" as they put it. They let me devleop a movement disorder, chorea with athetosis.
They let me get IBS and FMS and weaker and fall. They let me get numb from my knees down to where I could not feel my feet!!! And that all went away with Lyme treatment- they could have helped me- but they were stuck in their way of thinking-
Greta- I would really urge you to see an LLMD, a Lyme Literate MD!!!
Seriously,
Sincerely,
Sarah