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Old 01-18-2008, 06:19 PM
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Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
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Elder
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Join Date: May 2007
Posts: 7,009
15 yr Member
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Quote:
Originally Posted by Chris View Post
The letter is written and will be in the mail tomorrow. I really like my MS Specialist. The clinic seems to be really well run. This was the first hassle I've had with them, BUT, I've only been there for appointments so far. I'm a tad worried about starting Tysabri at their Infusion Centre.
One thing about the Infusion Center, and I know that I am not on Tysabri, but I have worked with the system to get it set up, that they are certified and trained through the TOUCH protocol. RW can vouch for me (right RW?????)

They have a protocol to follow that is very strict. Mistakes happen but due to the TOUCH protocol they are few and far between. They have to be with the protocol otherwise the infusion center will lose their certification and ability to infuse Tysabri. The training and certification process is carefully overseen and the paperwork is tedious for all involved. It is reviewed often and tracking is mandatory not optional.

I hope all goes well for you. You can call ahead to make sure they have everything ready to go the day before as Ty is "one vial one patient" so they will know if your drug has been ordered and delivered.
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Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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