Hi Ali

Things I have learnt - you can choose to ignore them if you want

a) schools for disabled kids - NOT GOOD! you need normal social interaction with kids your age who are NORMAL! because yes, you currently have RSD but at 12 there is a very good chance you will get over it - if you got to a special school then you will not be interacting with your "normal" peers AND you will not get a decent quality education. What I meant was a unit with decent inclusion policies which has a seperate unit attached where you can rest/ have a break if the pain is too much - for instance a friend of mine (who is VERY disabled by RSD, fed by tubes, utterly unable to move, hoist dependent etc) was offered a chance to go to a school where she was in normal classes with normal kids but when she needed she could go and lie down, they had hoists, hoist accessible bathrooms, all her computer equipment etc... so she could be fully integrated but still pace herself etc. In the end she didn't go because it was just too far... But ask around about whether there is a school with a decent inclusion policy and I will ask around...

I had more to add but have forgotten it.

On a personal note I might not be around for a while. I've been incredibly ill - about to write about it on another thread

much love

frogga xxxxxxx