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Member
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Join Date: Aug 2006
Location: Georgia
Posts: 975
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Member
Join Date: Aug 2006
Location: Georgia
Posts: 975
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Hello Kebsa,
I'm sorry to read about your experiences of late. I did have an exasperating period after I was diagnosed. I did fairly well for a few months, and then moved over to NYC from Great Britain to attend a Master's program. During that time, I had at least an exacerbation every 2-3 months. We still don't know if it was from the stress of being in school, being in a new country, etc. But, I continued my DMD at the time, which was also Betaferon, and started taking monthly pulse doses of Methylprednisolone. I changed my diet and started on the Swank diet, and also started in Physical Therapy twice a week.
I can't say what it was that turned things around, but eventually things seemed to quiet down for me. I've been off a DMD now for over a year due to the fact that I was trying to maintain a pregnancy (but infortunately this has not happened). I am now waiting to start on Tysabri as I had been in the Antegren trials several years ago. Are you seeing an MS Specialist, or have you gotten a second opinion from one? Perhaps a Specialist may have some ideas as to where to go from here.
Good luck to you. I do hope you start to feel better soon. Welcome to Neurotalk as well. I look forward to your posts.
All the best,
Chris
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"I didn't know he was dead; I thought he was British"
Woody Allen
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