Thanks for your replys.

Bhaaq i understand too well what you mean about the doctors!! Its so frustrating - just as i think i am getting somewhere i find myself back at square one. Its a total nightmare!

I'm awaiting an appointment to see a neurologist after a CT scan was "normal" so fingers crossed!
I will keep yous updated and thank you again for your responds, its good to know there are actually other people out there who DO understand.

Best wishes.