I have had MG since November of 2004 and had a Malignan Thumus Gland removed. I have had numerous problems,
Had to be interbated 3 times and spent a lot of time in intensive care and the hospital.
I have been through the mill trying Cellcept, Imuran, and Cyclosporan after beeing on them for the time they thought reasonable changed from one to the other. I am on the staples, Prednisone, Mestinon etc. and last Sept was taken off Cyclosporin because it was damaging my Kidneys and didn't really seem to be doing anything. In the beginning of this month [January I started having problems with the usual muscle weakness, double vision etc. and my doctor thinks it's because I am off the Cyclosporin and want me to meet with my Nephrologist to see if I can go back on the Cyclosporin, while I am not looking forward to it because it makes me sick to my stomach all the time
and I am taking enough pills as it is I guess I have to do what I have to do.
Thanks for listening,
Ted........