I also have a friend with ALS. The electrical shocks that you have been feeling can be caused by medication. I take Paxil everyday and when I am tired or about to go to sleep, if I have not missed a dose of Paxil, once in a while I will have a "shock" and it will shake me so hard the bed will jerk and wake my husband. I will wake up instantly. It is from too much medication, I have been told, in my system.