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Originally Posted by joellelee2000
I totally understand Dedra. You might know already but I'll tell you my son's story.At 6 years old he started having some severe gastro problems like projectile vomiting, severe abdominal pain, cronic diarrhea, and weight loss. Jump ahead 3 years later he was dx with Crohn's Disease. We have run the gamut with this disease. He's almost 17 now. He missed 55 days of school last year. He had a bowel resection in November of 2006.It is so hard to watch you baby suffer and not be able to do anything except stand by and support them. Just know that you are not alone.Btw, I'll be starting Tysabri soon and I'm going to start a log when I do.
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Hi Joellelee!
I have been following your story and was wondering if you knew that Tysabri was just approved for Crohn's disease too?
People who were in the trials have had amazing results with it. Most have run the gamut of all the available drugs, are on the verge of, or have had resections, and many have had returning disease after resection.
It comes with the standard warnings about use with other immunosuppressing drugs ( Remicade, Humira, etc) but for those who aren't on those drugs or who haven't had them for a specified amount of time, it is now available.
I hope all goes well with you and Tysabri! Please let us know how it goes with you.