Thread: My son
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Old 01-23-2008, 01:59 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Dedra,

How are you and nice to see you over here!

I am sorry things aren't moving along for Chris as he and you would like them to. I know how darned hard it was for me to WAIT and wonder if I was actually having results or if it was all wishful thinking on my part when something seemed better.

I finally decided that since I wasn't having serial relapses and no ongoing symptoms, it was working the way it was meant to and I relaxed. It really wasn't until I saw my 6 months MRI and went for my eye tests that I SAW clinical proof to back up what I was actually feeling! I hated questioning my own mind and wondering if it was just wishful thinking! I am usually so decisive and positive! ( Grrrr at MS doing THAT to me!)

This has been the longest I have been without a relapse since diagnosis and I am loving it! If it wasn't for the ongoing spazz and stiffness stuff I would swear it was gone. I am not sure if part of it is positive thinking or what, but I can't argue with the clinical testing results.

Has Chris had a relapse since he started? Has he ( or you) noticed anything that seems better than it was? Even just being able to balance my checkbook was a BONUS for me, because of all the cognitive difficulties I was having. I figure every little improvement is a victory for me.

I hope it all works out for Chris ( and for you, Mom!) Tell him to come on over and say hello to us here!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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