For about 4 years, I've been doing a limbo check in on Wednesdays for people who are not sure what they have, but know they have something.

We've compared notes on symptoms, doctor visits, talked meds and tests and offered support.


A lot of folks have helped one another along the way and some finally got a diagnosis (dx) or 2, lol.



Care to join me?

My story, short as I can tell you:

I started with migraines and was/am being tested for multiple sclerosis. Have brain lesions, ruled out the mimics.

Was dx'd with C spine injury and syringomyelia (T spine).

I've tried somewhere around 2 dozen meds since '03 - now I'm on topamax nightly, have a couple other RXs I rarely take. (muscle relaxers and supposed to be on lyrica)

I'm 44, 2 grown kids 1 granddaughter and a house full of pets.

I'm a class clown, love Rock n Roll, play guitar (couldn't for months when my spinal injury messed with my hands but it's a bit better now), big Rolling Stones and Johnny Depp fan, and I will never grow up.


Lost my job due to the headaches and fatigue, but I'm trying my hand as a writer.



Got a neuro appt tomorrow (trying to talk myself out of cancelling cuz it's cold outside).

Look forward to meeting you, hearing your stories. If we can't get answers for each other sooner (although sometimes we can help there) at least we are not alone on this island.