Welcome to the Family....I am Heather and I have full-body RSD (I feel like I am at an AA meeting right now). It started in my rt. foot in Jan 06 and spread quickly to my lft. foot. (within days)...I have had 40 plus lumbar sympathetic blocks (for your lower half of your body), a few stellate ganglion blocks (for the upper half of your body), and a Spinal Cord Stimulator Trial.

The SCS Trial was awful for me! When they removed it I started noticing the burning traveling up both my legs within a few day. Within 2 weeks I had Full-body RSD. I even have it in my face. Right now it just feels like a bad sunburn and it feels like acid burning when I cry.

I wanted to tell you the meds that I am on because it is a lot. Please feel free to ask me any questions regarding anything...

Topomax 100mg - 1 X day (for muscle spasms, tightness, and burning)
Klonopin 2mg - 1 X day (for sleep)
Fentanyl Patch 75mcg/hr - 1 X 48 hours (for pain)
Roxicodone 15mg - 3-4 X day (for pain)
Prozac 40mg - 1 X day (depression)
Ultram 50mg - 3 X day (for pain)

This combination works well for me. I need to function, because I have a 7 week old baby. Some people don't need this much or any of this.

Stay Strong and I am here if you need anything!


Heather