Nancy,
I'm still trying to figure out this whole Chat room thing, so I'm sorry I missed your response earlier. Thank you for that information. I've heard of Dr. Cantu somewhere along the way and will follow-up with your suggestions. Since this started I have been left with a guessing game about how to practically manage this condition hour to hour and day to day with little or no resources provided by the doctors. Sounds like you find just what I'm looking for.

We sort of hit a bump in the road this week with our Neurologist being worried about rebound headaches and taking my son off all pain meds. This has resulted in nearly constant headache pain of 8+ and little sleep....not good for recovery, I know. We finally have a consult at the neuro clinic at Children's tommorrow, so I'm happy to have your information to bring to the table. One of our biggest questions is Are we in the right place? We know the process will be slow and maybe even painful, but we can't afford misinformation to curtail us along the way!

I'm so encouraged by your son's story. I hate to think it might take us that long, but knowing (having been told by dr's) that he will make a full recovery is a blessing I thank God for many times a day.

One other question, if you have time. Did you have any experience with Amitriptyline? This antidepressant (used to prevent headaches) is the number one treatment my doctor is banking on, and I'm worried we are spending too much time waiting for this to get into his system and then tinker with dosages only to find out it won't be effective.

Thanks again for taking the time to help me!