Hi . Welcome to NT and online support .

There is a TN forum here:

http://neurotalk.psychcentral.com/forum26.html

How long have you been on Tegretol? I had been on it for a while (100 MGs), yet, for me, my neurologist and I discovered that Relpax helped more. At the time that my doc prescribed it, I only found one other person whose doctor had Rx'd it for off-label use - for TN.

I'm not familiar with HHT, though my mother had Von Willebrand's Disease (VWD).