Ellie-

I am sorry to hear about all of this. I have severe pain from my period, but not due to seizures.

I did not start getting my period until later, around 15. And I am also one of the "lucky" ones (NOT) who has excruciating cramps that come with it. I would start getting the cramps a day before and they would last at least 3 days into it. And this was before the time of ibuprofen...so I suffered. I took Tylenol, and lay in a fetal position with a heating pad, sweating it out. (Little did I know that all of the Deja vu episodes, nausea and lost time that started arounf this time was probably due to this change in life, nor would I know that they were seizures until I had GMs at 29).

I also was never regular....could go a month and a half then get it every two weeks...all over the place. Then I got to a point where I was spotting inbetween so I became very anemic. I was a mess.

I had an abnormal pap smear when I was 22 and was sent to a specialist to check things out. When she saw me and heard everything I was going through, she asked why I wasn't on the pill to help. I looked at her blankly...the pill? Heck, I was Catholic, my mother never talked about these things...the Doctor said I had so many medical reasons to be on the pill that it was insane.

So I tried it. I did help with the spotting and trying to regulate me and a few other pills later, it also helped reduce my cramps. Looking back, it also may have helped with how often I had SPs/CPs. It also may help a bit with your catmenial seizures. There have been studies where they are realizing that progesterone (whose level drops right before your period) may be protective against seizures. So maybe going on a mini-pill may help. There are also studies ongoing that are using progesterone creams and also lozenges. Lexia is right. Get to an OB/Gyn and get things checked out.

When you have a hysterectomy, it opens up a whole new world of concerns since you are no longer producing estrogen and progesterone...osteoporosis and other problems now become an issue, as well as, increased risk for some cancers. Also, there are many women whose seizures became worse when they went through menapause....hey, you said these seizures are just happening more recently...are you going through early menopause??

I know that you must be hurting a lot to be thinking of going to such an extreme, but hopefully you can find a med combo that helps.

I also had bad luck on Depakote. It never controlled my GMs and since it interferred with the pill, it also made things worse in that way too.

Sorry I am so all over the place with this post. Please see a Doc and get things checked out.

Hugs-
Stacy