which must make you feel a little bit nervous about your treatment...I think the goal (took me 15 years of being treated like an attention seeker which was rougher than it sounds) is to have a neurologist tell you what originally caused what disorder and you know they are right when they sucessfully predict what treatment(s) will alleviate it.

I am surprised someone would be on a long wait list for something that is causing pain bad enough to injure you - are you in the U.S.? What side effects are you getting from the gaba pentin? I was semi-conscious when they got me high enough (1000 milligrams and I met a nurse who was working on almost 3 times as much when I could not even stand up) to prevent my pain from inflaming the meninges around my brain - heck of a headache - and causing venous occlusions. Since my bad nerves that were sending out bad messages were in my neck, I was able to get some relief by treating the spasms they caused with baclofen, although I am waiting for my referral to a specialist who can tell me if rf 'resection' would help.

Luckily I have had very little constant allodynia, so I don't know enough to help you as you deserve. But others here do, so try to keep this post going until someone more knowledgeable happens along and reads it. Also, you could try posting on an old bulletin board that this one replaced (but then someone revived the original a year or two later, so there's actually 2 different boards that overlap on some of the nerve-induced problems covered) it's ...brain.hastypasty.net/forums (where you would need to preface this string with http to use it as a site address to go to). You'd have to give yourself a screen name there, too.

I think that there was a good post, with links to go and read, under a thread titled Chronic Pain Syndrome very recently, so read some past posts here, too.

Also, make sure you search on any strings you can think of in both bulletin boards, because you are NOT alone, and might find some recent posters that you could try sending private mail to if their prior post makes them sound like they could help you articulate your questions better.
Good luck,
Jane