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In Remembrance
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Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
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In Remembrance
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
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I can't believe doc hoosh is still being cited, he ran a cash-up-front RSD business in which people had to pay thousands of dollars before he would see them, and, of course, he never cured anyone...his "Puzzles" jump from on topic to another so quickly that it's impossible to figure out what he actually said, and the only reason he refused to prescribe opiates to RSD patients was that he lost his DEA license...the guy is a fake.
Now, about diet: I developed RSD in 1995, and since then I have eaten foods from his "Avoid" list every day. I always have four different types of chocolate nearby; one of my favorite foods is home-made rolls and butter; I eat fried foods at least 5 times per week, and my only fluids are coffee and club soda (I haven't drunk plain water in years).
How has this affected my RSD pain? From 1996 until 2002, my feet burned constantly, relieved only by large doses of Neurontin and then Lamictal, and my allodynia was so severe I could only wear lamb-wool lined slippers (and only when I had to go outside). Since 2002, the burning pain subsided to the point where it is now completely gone...so is the allodynia. My feet don't burn and during a recent ice-storm they were covered by a doubled sheet and three blankets.
I am still hypersensitive to cold: If the room temp drops to 68 degrees, I suffer frostbite-like pain, so I'm certainly not in any kind of remission. The last time I bumped my toe, it felt like I hit it with a hammer (I almost felt I would pass out). and they still turn purple whenever they are dependent for more than ten minutes.
RSD is miserable enough, and I see no reason to make my life less happy by not eating stuff I like. I hope readers will listen to their bodies instead of the "experts": If you eat it and notice extra pain, don't eat it; if you miss eating it, try again and see if you still feel extra pain.
There is absolutely no evidence that food affects RSD pain; there isn't even a "threory" describing how food can affect our pain: Only doc Hoosh, and a few other "experts" say it, and they never explain how.
If food makes you feel better -- and if weight isn't a major issue in your life -- don't make your life even less comfortable just because a convicted fraud says you should...Vic
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