I was recently diagnosed in December '07 but even that is not 100%. I presented with Transverse Myelitis in May '07 which left me with permanent buzzing in my legs. It affected my gait pretty bad and gave me severe pain in my mid-back. I has a pseudo exacerbation in Sept. '07 and finally realized I needed to take time off from my type-A job and life. The second day on disability I had my second attack of Optic Neuritis in my left eye. 5 days of high dose Solu-medrol kicked it pretty well but I am left with consistent eye pain, dry/red eyes and I get headaches now from too much tv or computer work. I have one large, old lesion that could be the cause of my migraines or have nothing to do with anything...the doc said it could have happened at birth or 5 years ago there is no way to tell...so I have no other lesions, no visible lesion on my spine but 3 abnormal bands in my CSF and an elevated IgG count.
Lately my feet have been buzzing more after doing nothing...it had changed to only buzzing with moderate activity now they buzz all the time...annoying. My eyes were super painful for about 3 weeks and now the pain has died down...so I'm thinking it's the calm before the storm and am just waiting for the next shoe to drop.
I was on Copaxone for a short bit but could not tolerate the large, burning, itching welts. I have stopped the copaxone and will start Rebif next week...sigh. Not looking forward to the flu-like side effects.
I am a classic goth girl who loves NIN, the Cure, Depeche Mode and others. I am also a non-typical So-Cal native who lives in LA with no tan and no surf board and I do not like sprouts. I drink my Martinis straight up and prefer Bombay Sapphire. Shaken not stirred.
ok, that was enough, thanks for reading this far...see you in the threads.