It took me approximately 12 different doctors until I got a firm, definite TOS type diagnosis. (This includes different "names" for neurogenic TOS such as brachial plexus neuritis, etc.)

With my newest pain mgt. doc, (he's currently my primary doc for this problem), he is my 30th doctor.

What does this mean to you?

Don't give up, keep on seeking a good doc until you find one (or more) that you feel are helping you.