Thanx for thinking so highly of my opinion sweetie. Your hands look a lot like mine!

My fiingers tend to get cooler when I use them, they get so cold they burn and they swell. Above and below the knuckles fill up with what appears to be blood. The skin is very shiny, like it's coated with baby oil or something.

I'm sorry to see you like that...

I broke down last night and asked Brian why I had to get something like this, something that is so uncommon that it couldnt have been fixed earlier...he didn't have an answer either. Why couldn't it have been something common? Last night I think I was generally sick of faking I was okay I guess...every once in a while I need to release. Better home than work I guess!!!

Thanx for letting me into your personal world, it's very nice to make new friends such as you and Heather. I kinda feel like I've known you both my whole life...besides, I guess we have quite a bit in common including this awful, rare disease. Unfortunately!

I hope you're well today, sorry I havent been on much today. Pretty busy with the kids and what not. Sundays are usually our make up days together...I try to make up for the fact that Mommy is a workaholic to them on Sundays! My fingers probably needed the break as well...although they got swollen just by holding a fork. (Good thing that margarita was there!)



I did miss talking with the both of you...