Hi Sarah..
Welcome to Neuro Talk though I am sory you are herein such curcumstances, it sounds to me that you probibly have much to teach us my new friend as the information on truncial CRPS is very sparse I found. It's very nice to have you here amongst us welcome an if I can help in any way just ask.

My RSD didn't origionaly start in my torso but I get alot of pain and problems from my kidney area that comes and goes, I find when it's bad I cant rest my back against anything without it intensifying the pain.. vibrations will do it too bumps on the road if I am on the scooter or on a bus it sets it off nasty some days. I have full body systemic or generalized crps.. not sure what that means either but my organs feel like someone is trying to squese or pluckem.

It almost seems that you have a form of phantom type pain along with the systemic or full body CRPS, I realy admire what you are doing with your schooling very much.. I found that very inspiring and I would love to hear more about what you have acomplished over the years.

I am sory you feel so alone Sarah.. you are not now you are amoung friends here.. a shoulder or an ear.. or just some empathy you have come to the right place. research or exchanging experiences or just a you are welcome here.


Sandra