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Junior Member
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Join Date: Jan 2008
Location: Seattle, WA
Posts: 62
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Junior Member
Join Date: Jan 2008
Location: Seattle, WA
Posts: 62
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Another PPMS
Hi all
I am also PPMS person Diagnosed with MS in July 2001 - downhill from there...was classified PPMS within a year. As a side note, was also diagnosed with cancer - Multiple Myeloma within 2 weeks of my MS diagnosis
On Baclofen for spasms, oxycontin for pain (mostly for Multiple myeloma) though it helps with overall pain. I have been on and off Neurontin - up to 1800 MG.
Am interested in trying LDN - researching that now. As I am about to change neurologists - am anxious to see what the new doctor will offer, if anything.
Hope we can get a PPMS/SPMS area here, as I truly believe our concerns are different from those with RRMS.
Thanks!
Mo
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When the winds of changes shift ~ Adjust your sails!
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