Just a quick update on miss Hayley... Gets another eeg next week for suspected Sz activity (i.e. periods of dementia, and trembling upon awaking), her neuro-opthamologist appt went well, got good fundus photos, just a touch of pallor but looks good there. Endocrine lab check up (cyst damaging pituary already on GH replacement) not so good, cortisol low, needs to go back for more provacative testing, not good may need supplementation and surgery not sure yet, and finally sent off all her paperwork and scans for an opionion from Dr. Rekate (i.e. b/c I have 2 NS opinions to do surg now, 2 others say watch and wait, so still searching for the right answers...)
Love and Hugs to you all!