Thanks Alffe,
I was really pleased with the way the story was presented.
Gary has had ALS 8 1/2 years . and I know it is quite frightening for earlier stage PALS and slower progressing PALS to even comtemplate the advance stage he is in .
However, it does to me demonstrate , that with the right equipment , he can be comfortable and find quality of life.
That the abilty to communicate is not just a human desire , but a basic need.
And when those needs are met , it can mpact a persons life quite significantly.
To me , despite Gary's late stage , ihis story was presented in a very positive and upbeat way.
An attitude our family definitely tries to keep , in managing and coping with the disease.
You can see a very genuine " Gary smile " and our daughter jumped up right on the bed next to him playing with her Webkinz. The equipment does not intimidate her one bit. To her its just her Dad's voice.
I hope in the end it alleviates fears --and raises awareness that options do exist -- to keep PALS personalites unlocked even in Gary's very advanced stage --
Our goal in doing the interview was to help educate the public that the technology currently exists , as well as to to help alleviate PALS fears of becoming locked - in.
Lisa