View Single Post
Old 01-29-2008, 01:28 PM
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

I am so sorry things are hard for you right now. Its incredibly frustrating to be told that you are just nervous, go home, calm down, and it will be all better.

Please find a "team leader" like a great Primary care MD who can direct your care. Sit and speak to him/her honestly. Tell them, if this IS anxiety, you are willing to deal with that diagnosis, and work hard to get it under control, BUT you truly believe that other things are in play and would like some help figuring out what is going on with your body. Anxiety wont burst a vessel in your eye! No matter what, the Neuro had NO business doing an LP with NO lidocaine!!! that was just cruel. From just that interaction, it tells me that he wasnt interested in your care, or comfort, he just wanted to move you off his table. NO ONE should be treated that way. So, sit with an MD and ask them to help you make a map to figure out what is happening. Start simple, with the easy blood tests. Lyme, hep, CBC, LFT, B12 and the like. Those things can mimic MS. Move on to the MRI. My neuro tells me the MRI is MUCH more accurate than an LP as long as they use dye for the MRI. Show your MD that you are serious, and if its anxiety that you are willing to do the work to control it at the same time. Getting a partnership going will help you feel more in control and feel more heard. Being dismissed is an awful feeling.

If you meet with MDs that you feel are dimissive. FIRE THEM! Find one that hears you.

good luck and let us know how you are doing.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
momXseven (01-29-2008)