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Old 01-29-2008, 02:47 PM
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lou_lou lou_lou is offline
In Remembrance
 
Join Date: Sep 2006
Location: about 45 minutes to anywhere!
Posts: 3,086
15 yr Member
lou_lou lou_lou is offline
In Remembrance
lou_lou's Avatar
 
Join Date: Sep 2006
Location: about 45 minutes to anywhere!
Posts: 3,086
15 yr Member
Post dear therese

hello therese,
this is what you need to hear... but you do not want to hear it?

you may need to just go with what you have -because you can look up all the levodopa / carbidopa side effects online because dopa is the very oldest drug we have... and they call it the gold standard for PD,

and they do not call it the gold standard no absolutely no reason,

you may need to have a spect scan done on her, to get a very good look at the brain itself...

you might also order blood tests to check her potassium, and her B-12 level,
those are two things the Levodopa /carbidopa zap from the body...
so if you have a good doctor who knows about vitamins and minerals,
have her blood tested for these,

I had a girlfriend pass away this summer almost 34 years of age, she started taking these meds, and started going down hill, had the brain surgery,
that gave her a few good months and then down hill, and the doctors
at the big hospital in TX, couldn't help her for very long, she passed away
only 7 years after her diagnosis,

what I am trying to tell you is -you saw her do well on the quick sinemet
and the SR is not filling in the gaps
she is having too many on /offs... and all they will give you is more drugs
I am telling you this not to hurt you, but the doctor may work with you better
if you don't go in the office with a loaded barrell?

you may also go see another specialist - movement disorder specialist.
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with much love,
lou_lou


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by
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, on Flickr
pd documentary - part 2 and 3

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Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
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