Hello,
My name is Crystal. I am 28 years old and I was just diagnosed with a colloid cyst they think. I had a CT for sinus problems and my CT revealed a cyst in my sphenoid sinus and a possible colloid cyst in the third ventricle of the foramen of Monro which was faintly hyperdense. I had an MRI which showed nothing at first but after comparison of the CT they went back and located a 3.5 mm hyperdense lesion in the third ventricle on my MRI suggesting a colloid cyst. My doc did not even call me he had his nurse call me with my results just saying it was a benign lesion of the brain. I went and got my report and that is when I found out the size and how they could not find it at first on MRI because sometimes if it is tiny it cannot be visualized via MRI but a CT can see it more. I was like what the heck!! I asked for my doctor to call me cause I have so many questions but he has not. I wonder if I need to see a neurologist? They just want me to follow-up in 6 months with another CT to check for growth and I have to make the appointment myself. If it gets bigger how will I know the difference from a hydrocephalus headache than from just a regular tension or sinus headache. I do have visual disturbanaces a lot, but of course I am a medical transcriptionist and look at the computer screen all day long. I am pretty nervous. After doing some research via the internet on these cysts it scares the hell out of me especially since I have a 3.5 year old son and I am driving him around everywhere. What I want to know is what should I do should I seek out a 2nd opinion and try to get a referral to a neurologist myself or wait out the 6 months with my primary care doc and see what the CT shows. I would appreciate anyone's comments as now I do not feel alone. For these cysts to be so rare there sure are a lot of people out there with them. Look forward to getting responses.

Thanks,
Crystal