I am so glad you have found a good support group.
I find being on the spine and chronic pain forums in several different communities has really helped me.
I have found out so much information that way, things that are not in any site you can find online. So much technical information about our illnesses is only repeated on all the "online" places. Occasionally I will find something new but not often.
It looks like I should be hoping my problems stem from cervical rather than TOS, although either way is not good.
My doctor says I am now in a chronic pain syndrome and doubts that surgery would help these symptoms.
My neurosurgeon claims that since the MRI on my neck does not show enough to operate at this time I must have nerves being compressed by the "soft tissues".
Sorry gotta go, I have only been up 45min and my hands and arms are hurting too much to type any longer.
Cheers