Quote:
Originally Posted by GreyHoundLover
Oh, my Sushi days are over! It's a shame as well...because I feel so refreshed after a Sushi fix. Now I'm really mad at myself for being afraid to try it when I was younger! 
This disease really does it's best to rule your life I guess...
Personally I don't think that my diet was ever really bad by 'normal' standards to begin with! I've always been vuluptuous by nature... and I say "nature" because I've never been one for junk food or sugar and with my busy schedule I should be a bean pole!! I eat lots and lots of salads! (Although in the winter my body craves warmth)
It's frustrating when you think something is working yet the pain returns! It's like being on a diet for weight and Phlatoeing! (Only this is more painful!)
I do the Epson Salt baths, stretching, antioxidants...the whole shabang!
Does anyone here have a favorite recipe that's good for you with this horrible, despicable, life controlling, crappy disease???? (Sorry-venting)
Do any of you take Antioxidant supplements?
Has anyone ever been harmed by intaking too many foods and supplements with Antioxidants?
Please fill me with all your wisdom! This is a great post, thanx for posting it!
Hugs to you all my friends!
GHL |
I agree that this is a really great thread.
Vitamin E causes my arthritis to flare and affects the RSD as well. I tried it in very low doses and still had trouble.
B6 gives me headaches in the kind of doses the doctor recommended. I had to take less than 1/ 20th of a pill just to tame the headaches. Be careful with niacin since it can cause a flush which is most unpleasant. It would be even worse probably if I'd had the RSD at the time.
GreyHoundLover said it pretty well; "This disease really does it's best to rule your life I guess...". I scoffed early on when they told me that I had to learn to control the disease since I thought I was doing everything possible. I've learned an awful lot since then; you really do have to find ways to ignore it and tame it. Short of a remission it's your best chance. As the condition has gotten worse I've gotten better at handling it and the medications that I'm taking now are more effective.
And still I always have to "talk to the hand". Fortunately it lets me do most things that I really have to without balking so long as I don't ask much of it.