Thanks all of you! you really are the best!!!

I have an appointment with my neurologist in 2/ 3 weeks and he's like an uber Dystonia doctor and he actually LISTENS to me which is so awesome! so hopefully he can help me abit. Waiting for some test results to come back and will take it from there. I'm struggling abit at the moment because the pain is just awful - we are getting snow and rubbish like that and am so exhausted. I keep fitting alot and it's just so annoying! Also getting amnesia from the passing out/ fits. But oh well..

I'm just feeling down and isolated and fed up of this. I can't remember stuff so keep getting really confused. meugh. I'll get there. Just feels like my whole body is on fire and is being stabbed with long, long knives whilst my bones are burning and it feels like my skin is peeling off from burning as well as electrical shock pains which knock me out and the icy whip screaming pain. Meugh. Just want it to stop hurting. Just want sleep. Just want an hour without pain!!! grrrr

Much love and thanks so much all of you

Frogga xxxxxxxxxxx

PS - did exams and nearly finished all work for last semester!!!!