View Single Post
Old 01-31-2008, 09:37 PM
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

Quote:
Originally Posted by ewizabeth View Post
I get my 10th infusion a week from next Monday. I'm glad you started this thread because I was going to ask a question of some of the Tysabri veterans.

My next infusion will be nearly five weeks instead of my normal four because they have such a busy schedule at my doctor's office. Has anybody noticed feeling worse or more tired when they have it a little later than normal? I wish I were having it next week instead, I feel like I need my Tysab-tini soon.
I haven't missed by more than a day, so I can't help you on the length of time. I get the feeling I need more sometimes, usually around middle of the third week. I'm not sure if it's because I am doing more or what, but I would hate to miss an infusion or be late!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline