You mentioned a shunt, I imagine to drain CSF to your abdominal cavity. How large was the syrinx when they decided to shunt? Did you get relief? Did the syrinx return? We may have talked before, I dont know. How do you deal w/ the pain w/ hydro??? My thoracic pain REQUIRES more aggressive meds. I hope you can share more info, as I have had SM for ~4yrs and my son has it as well. However, he is asymptomatic! I have developed a claw-hand from RSD and I believe it is just the progression of the disease.
PS- Demand those missing meds! E