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Legendary
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Join Date: Jan 2008
Location: Australia
Posts: 12,030
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Legendary
Join Date: Jan 2008
Location: Australia
Posts: 12,030
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I'm so pleased your appointment went well Ro, and I'm thrilled for you that you'll be starting Tysabri soon!
Australia is still in the testing phase for Ty, so I guess it'll be quite some time before it's offered as a treatment here.
It's rather good that you didn't give this neuro away considering this very positive visit for you.
I also saw a neuro this week.....a new one for me! Every time I move house it seems I have to find a new Neuro! The fact that I move states obviously has something to do with that! :-)
He's ordered a new MRI of my brain and cervical spine ('cos of my recent exacerbation), and he mentioned some other test I've never heard of....similar to the VER (or) VEP) I had of my optic nerves, just on my spinal nerves this time instead!
He also asked me what medications I was on for MS. I told him what I'd tried and why I wasn't on anything. He said if I got worse, or had a bad relapse, he'd be giving me chemo..! Not sure that I'm too happy about that. I can't even remember the name of the drug he said 'cos I was a bit too stunned to take it in at the time. I do remember it wasn't any of the ones like Methotrexate, because I'd remember that.
I go back to see him in 4 weeks time to get the MRI results and may have to ask him again. I doubt very much that he'll get me to agree to chemo!
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