I'm atypical, too. The neuro says it is definitely demyelinating, but not typical of MS. That is why my dx is CNS Demyelinating Disease - he also calls it atypical MS. I have been told that my particular lesions can be seen in MS, but it is the lack of other more typical lesions that is confusing my case.

So, I have lesions that are seen in people with MS, sx and neuro exam seen in people with MS, some amount of permanent damage, but I'm still a mystery. At lease my neuro treats my sx and has done pulse IVSM which really helped with a lot of the disability I had. A lot of people with less than typical results get dismissed completely.