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Old 02-02-2008, 02:09 PM
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Hi Stephanie, a very warm welcome ( I live in Arizona)
I remember that day the Dr. told me I had RSD. I didn't have a clue.
I went over to othe hospital to have nuclear med tests. It shoes up in bone loss. My left hand was swollen red and couldn't move my fingers or touch it.
I found out about 5 years have I had shoulder surgery and had nerve damage the following day by swollen arm and frozen shoulder. I didn't have any treatment for RSD for 5 years even after many many Drs. That's why you are so fortunate to find out so early- you have a great chance of it going in remission. Blocks are done by an experienced anethesiologist. IF you choose to have this done ask the Dr. how many he has done. You may even have to a larger town to get a good hospital with Drs. that know about RSD and have experience. The Block I understand work best in the first 6 months. After many Drs. I have a wonderful one- A pshchiatrist with a degress in neurology and is also is a pharmacologist. Nice combo yay Different drugs work well with different people. I changed from Neurotin to Lyrica and it works better for me. I take vicodin for pain, two different blood pressure pills because rsd affects blood pressure. two different anti depressants because depression often come along. They also are effective in nerve pain. I take antivan and anti-anxiety drug because I too have a lot of stresses. When you can calm down, the sympathetic nerve calms down.
Thats why many have a time for just themselves for meditating, listening to relaxing music, praying, swimming whatever you can do that is relaxing.
I also take a sleeping pill as I need it I have full body RSD. So you really are in a good place. I hope you didn't sign off on the insurance issues surrounding the car accident, because if you don't go into remission it can (not always) be a long road Drs. Therapy, Medication, Not being able to go back to work. Many need to go on Social Security Disability. They now recognize RSD as a disorder that qualifies them for it. I haven't applied even though I would get it. I have very good insurance and like to pick my Drs. and hospitals that I want.
There are so many wonderful people on this site. We will always be here to answer questions, just listen, but read, read, read, then you will be able to make the best decisions. The principle in getting this stopped is to cause the sypathetic nerve to quit sending pain signals to your brain. For some reason after an injury or surgery, normal pain signals do their job, but just never quit. Because they run all over your body, it jumps around to different spots.
Like from your left arm to your right arm. or from your left arm to your left leg and foot. from your upper body to your lower body. Also internal organs like your heart, I don't want to scare you, but if the accident file is still open, keep it that way. My daughter is a court reporter and has done jobs on RSD
It can be a long road, or even the short road is expensive. I hope I haven't dumped too much on you, I care, and wished I new 12 years ago what I do now. Please let us know how you are doing and what kind of help you are getting. It is definetly something you do this along.It's difficult for others, evin close friends to understand what you are going thru and the degress of pain that is involved. For me it was like a death, losing my past athletic self to what I can do not. It helps to look gratefully at wha wet have and can do.

Hi to all above this letter. Yes, my daughter just called , she and hubby moved to Chicago in Sept. He's on a 3 day flight, he's a com. pilot. She's bring your doggie with her. Our cat get's the upstairs and she get's the downstairs. He wants to be friends but she doesn't. Our cat is bigger than the dog. She is a min pin. Soft hugs, loretta jewell
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