I'm sorry to hear you are suffering so much - but you cant give up.... I'm not expert on the meds at all - but did have a friend with severe autoimmune issues that also were accomanied by severe back pain - she was on constant morphine - which cut the pain but caused constant nauesa that she also had to take meds to control, and made it dangerous to drive on the med combo.... is morphine an option for you however maybe just at home? She also had a morphine pump put in her back - it cut the pain a great deal and reduced her dose of the drug - but she had a slow spinal fluid leak from it and resulting headache and had to have it taken out... this was several years ago - maybe they have perfected this technique more?
I sure hope they can find you some relief - sending good thoughts....