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Old 02-02-2008, 05:27 PM
gizmogirl gizmogirl is offline
Junior Member
 
Join Date: Jan 2008
Location: palo alto ca
Posts: 41
15 yr Member
gizmogirl gizmogirl is offline
Junior Member
 
Join Date: Jan 2008
Location: palo alto ca
Posts: 41
15 yr Member
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At one point, I thought I might have TOS. I did the test where you take your pulse when your arm is down, and then take it when your arm is up in the air. Neither I nor my husband could even find a pulse when it was up in the air. I also had visually obvious circulatory insufficiency to my hand (mottled), hand always cold, easily spasmed, sensitized, and spasms so bad on that side of the neck and shoulder that I would get headaches and visually obvious atrophy. My neurologist moved my arm into the air and said after about 2 seconds, "Your pulse is fine. You definitely don't have TOS". She was right. I asked her if there were tests that could confirm it, and she said yes but suggested I save my $$. I will ask her in 3 months when I see her for you. Can you work up a sweat daily doing aerobics of some kind? That would go a ways toward delaying problems. Do you have health insurance? If I were you, I would want to go to as many bulletin boards as possible asking how TOS is diagnosed, because my neurologist is usually right, as she was in my case. You wouldn't want a pinched nerve to become damaged because you assumed that it was TOS if it isn't, for example.
Good luck,
Jane
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1994 broke neck lifting dad - misdiagnosed 4 yrs by HMO as carpal tunnel and malingerer (!) Lamination with titanium 97 - full Central Sensitization by 2000. Now get meninges inflammatory attacks that cause venous occusions leaving me concussed or writhing without enough time to recuperate. Can't wait for Clifford Woolfe's selective painkiller for only nerves in pain. Now on Methadone, bacofen, etc. usual effects
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