Thread: hi everyone
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Old 02-02-2008, 05:59 PM
gizmogirl gizmogirl is offline
Junior Member
 
Join Date: Jan 2008
Location: palo alto ca
Posts: 41
15 yr Member
gizmogirl gizmogirl is offline
Junior Member
 
Join Date: Jan 2008
Location: palo alto ca
Posts: 41
15 yr Member
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hi, welcome to a caring bunch of people whom I wish I had known about years ago. I have a rare chronic pain problem called central sensitization, which you can get only when you have severe somatic pain that is not treated for more than a year, in which even if the original pain is taken away, the nerves have set up a pain generator that is perpetual and recruits other nerves to make it even worse. I have lots of tiny holes in my brain MRI's from the migraine-like brain inflammation that regularly ensues (migraine drugs DO help a bit since they are cerebral vasoconstrictors, but migraine preventatives do not work). If you are getting inflammation of the meninges with your headaches, you should try a cerebral vasoconstrictor like Relpax (more modern than imitrex), and preventatives if you have migraines, a tendency for which is inherited.
You need to get a pain doctor to prescribe medications that are strong enough to let you function without making you a zombie. Sometimes opiates are the only thing.
For you to get either the migraine meds or the pain killers, you should keep a diary, even if you just print off a calendar off the internet and write a few abbreviations per day. You should say what your pain level was for how many hours, anything you did that kicked it off (this may also document how disabling your pain is), anything unusual about that day (Eg great day! had slept well and moved bowels and drank extra water yesterday...don't we all wish it were that simple!).
Gather your "objective as possible data", and go to nytimes.com and search "jane brody pain management" for the articles she has written over the past year or so on statistics for how undertreated pain is and how to get treated right - especially read her own all-too-common experience with breakthrough pain relievers rather than pain relievers after her knee surgery. Many doctors will listen to someone of her stature. I think you can google her but you might get too many extraneous references.
Armed now with your diary and informed by Jane Brody and with quotes and stats, you can better find out why your doc doesn't feel comfortable giving you pain killers - maybe he has the valid concern that you are not yet diagnosed with enough specificity - is your nerve pain neuropathic? Can the doctor or the specialist who documented your myofascial pain either prescribe, recommend prescriptions, or refer you to a doctor who can?
By specifically asking, you can sometimes get them to put you on the right road to treatment.
Good luck and keep posting to these people - there are people who know a LOT more than me, and maybe just haven't seen you yet.
Jane
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1994 broke neck lifting dad - misdiagnosed 4 yrs by HMO as carpal tunnel and malingerer (!) Lamination with titanium 97 - full Central Sensitization by 2000. Now get meninges inflammatory attacks that cause venous occusions leaving me concussed or writhing without enough time to recuperate. Can't wait for Clifford Woolfe's selective painkiller for only nerves in pain. Now on Methadone, bacofen, etc. usual effects
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