I can relate. My Mom (and Dad for that matter) wouldn't tell me things unless I asked, and even then I wasn't sure to get an answer. But we haven't spoken in about 10 years. They don't know about my MS.

As for keeping information to themselves; when I was 16 I was hospitalized for a week for a series of tests for a limp I developed. about 5 years later I read an article about a woman with MS and the tests she went through. They were the same tests I had done! Assuming a clean bill of health, I never thought too much more about it.

Flash forward 30 years. New SX, new tests, new Dx, MS. I write for my records from way back when and discover a diagnosis of RSD! No one ever told me about it.

The things parents do in the name of protecting you. (I'm sure my mom didn't want me to worry about it, which, as it turned out I didn't have to. I'm one of the lucky few whose RSD goes into remission and stays there.)