Thread: Mad, Tysabri, flair(?) and major vent (sorry)
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Old 02-05-2008, 08:27 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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I'm so sorry to hear you don't feel well. I hope things are better today.

I would try to call the neuro and if you don't get through there, then call the Tysabri nurse and tell her what is happening.

Even if you do go in for the infusion, you will get some attention when she goes through the pre-infusion checklist and she will more than likely call your neuro for instructions as to what to do, when she finds out how bad off you are.

Good Luck! Please let us know how it goes!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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SurvivingMSwithHOPE (02-05-2008)