Thread: First Flare
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Old 02-06-2008, 12:21 PM
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HSPCraig HSPCraig is offline
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Join Date: Nov 2007
Location: Richmond, Virginia
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HSPCraig HSPCraig is offline
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HSPCraig's Avatar
 
Join Date: Nov 2007
Location: Richmond, Virginia
Posts: 177
15 yr Member
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Hi Catch,

Well, I don't know if IV steroids would actually do you any good if you're already feeling better and especially since the steroids have their own side effects to deal with on top of your symptoms.

IV steroids are designed to help you get through an exascerbation with lessened symptom load. 3 days is not that bad and a two week taper would make it all tolerable. But I had side effects that far exceeded what benefit the steroids provided. Metallic taste, pain, severe hic-cups for up to 72 hours, injection site problems, not to mention that it lowers your immune system and makes you suseptable to everything flying around out there for up to 28 days. Now, that's my experience. It may be different with you.

Only you can tell with your own body if you really need IV steroids. Don't worry about the paper work already being done. If you want to cancel, cancel. That's life in medicine.

Best of luck to you and keep us informed.
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Craig Mattice
"Live Like You Mean It!"

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Dx'd 12/00 w/RRMS
Dx'd 05/01 w/SPMS
03/05 Rescinded MS Dx Neuro thinks something else
03/06 New Dx of Hereditary Spastic Paraplegia (HSP)
Rare deteriorating motor neuron disease. No cure. No Treatments.
Only 20,000 Dx'd patients in US
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