Julie,
Sending even MORE hugs to you!

Sounds like your neuro frankly sucks and I hope that you can get into the new neuro for a second opinion soon.
I also have to chime in about keeping a symptom diary. I find it much easier to have a list of concerns and symptoms with me so I don't forget to mention them. I also have DH come with me to any *major* appointments, one of which is the neuro. A lot of times he can help clarify things if I'm having trouble putting my thoughts into words and it also helps my neuro in some cases to get DH's viewpoint.
Hope your children are feeling better soon!