Thanks all for your replies. This all started a couple of years ago with numbness in one toe, and slowly progressed to this. But this is just scary. What' s next, how far will it go and how fast will it progress.

I have just started Lyrica and take 450 a day and will up it to 600 soon. the jelly knees is a new one, and am wondering how much the RSD is a contributor to all of this.

I will try those stretches. Thank you.


I'm having an MRI at 4:30 this morning. So I have to stay up all night. Fun. I hope someone will be in a chat room.

I used to be able to pick up a pencil with my toes, but now I can hardly bend them.

Anyways that's my story and I'm sticking to it !