Oh you poor thing! What a sod to tell you that you had to live with that pain. Until I read your post I had never heard of Paratrigeminal Neuralgia, but it certainly sounds nasty, and I feel for you.

I too take an anti-epliptic medication for nerve pain, except the one I take is called Epilum in Australia (Sodium Valproate), but it's very similar to Tegretol and I daresay they do the same thing.

I've also been prescribed Oxycodone for those times when even the Epilum doesn't help the pain.

How dare that neuro take you off evrything, and leave you to suffer!

Mega cyber hugs coming your way.