Quote:
Originally Posted by kebsa
I too am glad that you have such a wonderfully supportive neurologist, it also somewhat pleasing to hear that even though you have a progressive form of MS and have had some progression, that your neuro thinks this has not been too bad over the 9 yr period. I am also really glad to hear you have the meds sorted- here in Australia a lot of us fear being re dx as secondary progressive because the pharmaceutical benefit scheme that we get our prescription through will only support the meds for Relapsing remitting Ms at this stage- as soon as we become SP, we become ineligible and as you know the full cost is extreme (around $1200 per month here) and those are the only two options we have for medications in this country- i have been told that most neuros are slow to re classify patients for the same reason because there is clear evidence to support the DMD's in SP too now. I hope things continue to go smoothly for you!
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kebsa,
Thank you for your kind response. I am glad everything worked out as it did. I am so grateful to have such a good Neuro who is not only very intellegent but also takes an interest in me as a person. Very rare these day.
My MS went from RR to SP very quickly. I had very obvious symptoms in early 1992 that developed to SP by Jan. of 1993. Only one MS med was out and my Neuro (same one I have now) did not want to consider putting me on it. It was for RR and she was leery of the med and some of her patients weren't doing well on it.
Her thinking now is that it is better for me to be on a med even with SP because there are several available that hopefully will prevent me from getting worse.
I hate to hear that meds aren't available for SP in Australia. If there is a slight chance that they help with SP, they should be taken in my opinion.