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In Remembrance
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Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
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In Remembrance
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
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Update on registry progress:
Thanks to the outreach of advocates from across the country, several key Senators and Representatives have signed on as cosponsors of the ALS Registry Act (H.R. 4033/S. 1353). This is a direct result of the more than 1,100 e-mails that ALSA Advocates sent to Congress in the past week alone. Thanks to your hard work we now have 208 cosponsors in the House and 48 in the Senate, a tremendous show of support that gives us momentum when Congress returns after the elections. Recent cosponsors include:
Rep. Melissa Bean (D-IL)
Sen. John Kerry (D-MA)
Sen. Jim Talent (R-MO)
Rep. Jon Porter (R-NV)
Rep. Jeb Bradley (R-NH)
Rep. Rush Holt (D-NJ)
Rep. Melvin Watt (D-NC)
Sen. Ron Wyden (D-OR)
Rep. Darlene Hooley (D-OR)
Rep. John Murtha (D-PA)
Rep. Dave Reichert (R-WA)
Congress has adjourned for the elections, but they are expected to return to Washington for a short period of time later in November before adjourning for the year. Therefore, we likely will only have a small window of time to pass the Registry Act.
We currently are working closely with the lead sponsors of the ALS Registry Act to develop a strategy for passing this legislation when Congress reconvenes after the November elections. However, we need you stay involved and actively participate in our advocacy efforts.
If you have not already contacted your Members of Congress within the past few weeks and urged them to cosponsor the ALS Registry Act, please do so and ask your family and friends to reach out to their Members of Congress as well.
Sample letters are available by selecting the link to the Advocacy Action Center, which can be found on the ALSA website. The site will identify your Members of Congress for you and will allow you to send an e-mail directly to them. Please personalize the sample letter we have provided and let your Members of Congress know how this disease truly impacts their constituents.
If you have any questions or would like assistance reaching out to your Members of Congress, please contact Patrick Fritz in The ALS Association Advocacy Department at pfritz@alsa-national.org or toll-free at 1-877-444-ALSA.
Thank you!
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ALS/MND Registry
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