Yes, you did help. And that is exactly what I am talking about!! Same for me. It feels like torture!! it is enough to make you drop to your knees and say I GIVE UP!!
I know for sure ear pain is part of TN because my mom and my sister both have TN not associated with MS or anything else. It is called primary TN. My mom is especially affected by ear pain.
Her TN and mine seem to run in a simular path. My sisters TN is located in the upper branch of the nerve pathway. Mine is in the lower pathway.
I have had my teeth checked out. Checked for TMJ, a bad tooth, ear infection.....nothing. I've had MRI's and there is nothing there that would be causing pain in the Trigeminal nerve area.
I have optic neuritis for the second time in less than 9 months and will be going to an MS clinic on Wednesday. So, maybe I will get an answer soon, who knows. I know some people have Ms for sure, but do not have ON, some do not have TN,,,, I have both ON and TN, and now even some double vision,,,,, but not enough evidence on my brain MRI to get a diagnosis so far. But I have not been to an MS specialist yet. So that is where I am going this week. Which means more doctor visits and tests.
LA
Quote:
Originally Posted by CayoKay
I get the "ice-pick" thing in my right ear.
very sharp, sudden stabbing pain that makes me gasp aloud, and grip the chair arms until it lessens.
maybe lasts a minute, and the fading lasts another 10 minutes.
it comes in waves, sometimes a dozen "stabs" in a span of three hours.
last flare involving TN was last summer, lasted about 3 weeks.
have had maybe 15 or so isolated "stabs" since that time... possibly "pseudo-exacerbations" (I dunno, MS can be tough to figure out)
I'd say 85% occurs in my right ear, 10% in my right cheekbone and right temple, and 5% in my LEFT ear.
doc called it bilateral MS-associated trigeminal neuralgia
hope that helped.
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