I love that and it does reflect my opinion so often! My neurologist has never used idiopathic along with my neuropathy, as a matter of fact, he has never even tried to analyze the type of neuropathy I have, I just realized that. Weird that I never questioned him on the type. Probably because I know my neuropathy is B12 deficiency caused by my celiac disease, which still stumps most doctors. I didn't question him about it, simply because in the beginning, he was so obnoxious about whether or not I actually was celiac, to which I finally told him, "The fact of the matter is, I have been gluten free for 7 yrs and will be forever, so lets talk about my neuropathy!" He didn't actually believe I had celiac until I mentioned Dr. Peter Green one day, then all of a sudden, I became a celiac and he actually realized I might just know something about B12 deficiency after all! He knows Dr. Green, and by accidentally dropping a name, my doctor finally believed me--how sad is that?

He hasn't actually tested for small fiber neuropathy, he simply stated that I probably have "it" in the rest of my body. He only diagnosed "peripheral neuropathy" in my hands and wrists, inoperable carpal tunnel. When I asked him to explain to me why I have all these other symptoms in my shoulders, legs and feet, he then says, "Well, you probably have small fiber neuropathy in the rest of your body." End of discussion. Maybe I should find a new doctor. I have learned to like him, but he doesn't seem to be finding answers for me, does he? Yet, what answers will he find, the ones I already know? He isn't the doctor I originally wanted to see anyways, I wanted Dr. Gudesblatt, who takes months to see, but is more into the B12 deficiency neuropathy, maybe I will try to get an appt with him again.

I'm so lucky to have 2 diseases that so little is known about!!!